The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Governed by a Board of Trustees – and supported by a Medical Advisory Committee comprised of some of the world’s leading clinical immunologists, as well as hundreds of grassroots volunteers and a compassionate, professional staff – IDF has provided individuals and their families with vital knowledge and made tremendous strides in:
-Helping the patient and medical community gain a broader understanding of primary immunodeficiency diseases through education and outreach efforts;
-Promoting, participating, and funding research that has helped characterize primary immunodeficiency diseases and given patients and physicians substantially improved treatment options;
-Addressing patient needs through public policy programs by focusing on issues such as insurance reimbursement, patient confidentiality, ensuring the safety and availability of immunoglobulin therapy, and maintaining and enhancing patient access to treatment options.
Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. In fact, the World Health Organization recognizes more than 185 of these diseases that affect thousands of children and adults in the United States. Years ago, a diagnosis of a primary immunodeficiency meant extremely compromised lives, not just for the patients but for their families as well. Today, with early diagnosis and appropriate therapies, many patients with that same diagnosis can live healthy, productive lives.
Thousands of individuals and families affected by primary immunodeficiency diseases depend on IDF for advocacy, education and empowerment.